Making a Difference

The Richa Foundation presents Sushma Maharjan

The Richa Bajimaya Memorial Foundation is a non-profit organization of  young professionals that is dedicated to creating a movement against cancer. It was established in 2007 as a tribute to the inspirational Richa Bajimaya. At a young age of 23, Richa succumbed to bone cancer (Ewing’s Sarcoma), leaving her friends and loved ones heart broken. However, all who knew her were touched by her unconditional bravery and optimism promised to make her short stay on earth count. They got together to create the foundation in her memory. It exists to change the way people see cancer and cancer patients, by showing the to world the courage that resides within every individual who has cancer or has battled it. It is also working towards removing all sense of dread the word ‘cancer’ invokes, for cancer can be prevented and defeated. We present to you one such woman whose story is full of courage and hope.



There is nothing more beautiful in nature than a lone lotus that arises out of the stagnancy of muddy water. Borne of adversity, Sushma ji’s beauty rivals that of such a lotus. At 32, she was diagnosed with breast cancer, underwent surgery to remove the affected breast shortly after diagnosis and endured several cycles of debilitating chemotherapy. Now, her life is cancer free and she has dedicated the gift of her life to helping others. Hers is a story of victory and hope that has inspired everyone around her.

On a sunny January afternoon, Sushma ji waited for us to arrive at a café for a cup of coffee and some conversation. Although I had never met her before, I recognized her from a distance. There was a certain spring to her movements, a bright smile on her face and the sun lit up her short cropped hair.
 
As we sat down to talk, her husband, Mike Lilly sitting opposite her, listened intently to every word she said, with a mild smile lighting up his eyes.
 
 
 

Sushma ji, let's start off with an introduction. Who is Sushma Maharjan?

 

 

I am Sushma Maharjan Lilly, and a breast cancer survivor. I live in Dhobighat and although I don’t have a job right now, I volunteer at Animal Nepal. What I really want to do is to open up my own organization.

What type of organization are you thinking of opening?

I want to open a home for street children and unwanted children and am already working towards making that a reality. Besides this, I am very keen on helping people through anything. Unfortunately, I am not able to work like I used to in the past because of my physical weakness. But I still think I can contribute a lot, just by being able to connect with people. 

What has inspired you to work with children?

Although I am not physically strong enough to do a full-time job, I am not content sitting at home, only resting. I want to make a difference in the lives of less privileged people. Many of the neglected children have nothing worthwhile and I feel that their lives should be made more meaningful. 

 
My own experiences have taught me that life is unreliable. No one knows how long they will be on this earth. We should make the most of what we have. I didn’t think this way before being diagnosed with cancer. But now, I have gained a wider perspective on life.  Like I said earlier, I am not content just sitting and doing nothing. A job is meaningless unless it’s making a positive impact on someone.  By working with underprivileged children, I hope to give them a secure future so that they may make something of themselves.
 
It's great to see so much positivity in you. How did you gain this sense of positivity?

I was not always this positive. I feel that I have become more expressive. Now, when I go out and meet people, I introduce myself as a cancer patient. When talking to ladies in the hospital, I tell them to take care of themselves. I share my experiences with them. I tell them not to feel shy about a knot they may have, not to hide it for long and to have it checked as soon as possible. I tell them that only they are responsible for their health. Until they share, they won’t get any help. 

Do you think that there is too much secrecy regarding cancer in our society?

There is a lot of secrecy and prejudices when it comes to diseases people don’t know anything about, especially cancer. When I was diagnosed with breast cancer, my own friends told me things like I shouldn’t consider removing my breast before marriage, and that I would become a cripple. They used to ask me how I got cancer and why I got it. That little word ‘why’ struck me like a slap every time someone asked me. It carried a tone of accusation like I had done something to cause this to happen to me, like it was my fault. I didn’t know any better then and started getting feelings of guilt, like maybe I had done something wrong in life to deserve such a disease. 

Why do you think they questioned you in that way?

It is an unfortunate fact of our society. The attitude of people is disappointing, especially at times when you need their support the most. People love to play the blame game whenever anything bad happens. They don’t care what the facts are and they don’t care what their words do to other people. 

How can this attitude be changed?
 
I think people should be made aware of the facts. When I went to hospital later, I found out women much younger than me, like 22 years of age, also had breast cancer. I learned that it was nothing I did that caused it. There were women who had undergone several rounds of chemotherapy and were still fighting the disease. I was not alone in this battle. There were others like me. This gave me strength. 
 
When you went to hospital, what did you think of the attitudes of doctors there?

The doctors who attended to me were wonderful. They were very direct and told me that I should not delay treatment. They gave me almost all the facts I needed to know, answered all my questions with patience. Treatment started next day and the operation occurred in one week. My postoperative recovery was very quick, as my doctors said. 

What gave you the strength to recover so quickly from surgery?

I consciously made myself strong. I hate hospitals. I’ve had some bad experiences from when my parents were admitted. So I ate well, exercised like the doctors had told me and followed their advice diligently to recover as quickly as I could. Other patients would just laze around the whole day, doing nothing the doctors advised. It helped when I fostered positive feelings in myself and believed that I could be healthy again. All my life I’ve been healthy and I just refused to believe that this disease could defeat me. I actively fought to get healthy. 

What role did your family play in helping you recover?

My father took great care of me. He got me food whenever I felt hungry, even at night. The rest of my family was also there for me. My mother, however, was ill herself and couldn’t do much. One of my darkest moments was after my fourth round of chemo, when my mother got very sick and had to be admitted to the ICU. She didn’t allow me to come to hospital because of my condition. But I had to see her and went anyway, wearing masks and taking all the precautions not to get infected. She died a day before my next chemo. It was one of the most difficult moments for me when I had to return to hospital the following day for chemo. When I think of it now, I wish that whole year did not exist at all. It’s almost unbearable to remember it. But I am glad that it’s over and I am able to put it all behind me and move forward. 

Would you say that you are happy now?

Yes, I am content with my life at the moment. Now, I grab every opportunity I get to talk to people about what I went through and hope that they may learn from it. So many people are oblivious to the dangers of late diagnosis when it comes to cancer. I tell them not to take the chance and get treatment as soon as possible. I tell them cancer can be defeated if you believe and fight hard.

Every time I go for a check up, I go and talk to other cancer patients. I have created several good friendships this way. They listen to fellow sufferers. I try to give hope to people who don’t have any.
 
I myself was disillusioned at one time during my treatment. The doctor had told me that three rounds of chemo are usually enough and I might not need more. But later, I had to undergo more rounds of chemo. I was not prepared to face more. But then the doctors explained really nicely that more rounds of chemo would mean a lesser chance of recurrence and I consoled myself. 
 
Were there any disappointments when it came to the doctors’ handling of your case?

Overall, the doctors were very nice. But I wish they had explained the side effects of chemotherapy more clearly. I didn’t know that I would become so sick and weak afterwards that I had to stay in hospital for several days. For 10 days after chemo, I would be bedridden and after 21 days there would be another cycle. But it was all worthwhile as I am now healthy. 

 
There should always be hope and belief that I will get through difficulties and I will one day be better. That day may not be tomorrow or the day after, but that day will surely come. That was the notion that kept me going even in the darkest hours of my ordeal. 
 
I wish everyone thought like you Sushma ji. You are truly an inspiration. Thank you for sharing.

 Thank you. I just hope other people who have been diagnosed with cancer stay positive and optimistic. It really helps. I never miss a chance to say that to them, and to share my own experiences with them.

 
And so the conversation ended, with a warm handshake and a big smile from the luminescent and brave Sushma ji.  

 

Photography by Rishi Amatya, V.E.N.T! Magazine.

Pal ( Feb 5th 2011, 06:42 PM ) says:

it is such an inspiring story and yet i cannot help but think how many such survivor stories are there in Nepal: few. Breast cancer, of all the cancers, i think bears so much taboo in itself...i dont know why...maybe i know why..but i still cannot fathom why does it need to be a taboo :(

Sajani ( Feb 5th 2011, 09:13 PM ) says:

Its really an inspiring story. I have met her so many times, i even know that she is a cancer survivor but reading the whole story made me revere her. I would want this story to pass on to everyone...and as Pal, am really shocked by the taboo the cancer holds...Best wishes to the inspiring lady...Hope that she would success in her endeavors...Cheers.

simple pRa ( Feb 5th 2011, 10:04 PM ) says:

She is a true inspiration, to us all.

KA ( Feb 5th 2011, 10:13 PM ) says:

perception towards cancer and its understanding is what needs to be changed........very nice portrayal of a fighter.

Deepak Shrestha ( Feb 6th 2011, 04:09 PM ) says:

Cancer is often seen with fear and cancer patients with pity. Sushma Ji stands above this general belief. Truly inspiring. Let's change the way people perceive cancer and cancer patients. let's Unite Against Cancer.

Merina ( Feb 6th 2011, 05:06 PM ) says:

her story taught me to be optimistic in every way....
"There should always be hope and belief that I will get through difficulties and I will one day be better. That day may not be tomorrow or the day after, but that day will surely come. That was the notion that kept me going even in the darkest hours of my ordeal. "
thank you for sharing :)

Surendra ( Feb 7th 2011, 01:17 AM ) says:

Thank for sharing the experience. It is truly inspiring.

abish adhikari ( Feb 7th 2011, 05:19 AM ) says:

a wonderful interview !
helped me 'relearn' that cancer can be fought with success.

shreya bajimaya ( Feb 7th 2011, 09:34 AM ) says:

..its a long way she traveled and she made it with such a courage and optimism!! truely inspirational...words are not enough to express my admiration for her.. :) best wishes to sushma ji!!

Mike Lilly ( Apr 27th 2011, 01:16 PM ) says:

I am so blessed to be the husband of this bright, beautiful, and caring woman. Everyday with her is inspiring and enriching and filled with sunshine! Please everyone you must meet her and see and feel her warmth and strength. Also, all the best to the friends from the Richa Foundation.

Elizabeth Beeney-Freville ( Apr 27th 2011, 04:36 PM ) says:

I did not realize that you (Sushma) had breast cancer and underwent all of these horrible experiences that come with having this disease. What a lovely and inspirational lady! Gorgeous on the outside and on the inside too! Best wishes to you sweetie! ♥{{{{{BIG HUGS}}}}}♥

Bhushan k. Shrestha ( May 8th 2011, 05:22 PM ) says:

Thanx For Sharing ur Experience. We r always with you.
Take Care. Miss u.

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